Patients and Families
If you or someone in your family has sickle cell disease, you may be looking for disease information and treatment options. This website is a designed to educate you on sickle cell disease (SCD) and to provide information about Parent-To-Child (Haplo) bone marrow transplants for sickle cell disease.
The hospitals shown at the top of the page have joined together to form a consortium which offers sickle cell patients the opportunity to participate in a clinical trial (study). The study is named The Safety and Efficacy of Prophylactic Defibrotide Administration in Children, Adolescents, and Young Adults with Sickle Cell Disease Following Myeloablative Conditioning (MAC) and Haploidentical Stem Cell Transplantation Utilizing CD34 Enrichment and T-Cell (CD3) Addback, and is supported by a variety of major health organizations nationwide.
To learn more about the clinical trial (study) being offered:
- Please take a look at the Parent-To-Child (Haplo) Transplant page or visit www.clinicaltrials.gov. Please talk with your doctor as part of your informed decision making process.
- View this video overview for more information.
- We've also partnered with the Children’s Sickle Cell Foundation and the Sickle Cell Community Advisory Council of Northern California to help educate patients, their families, and communities. Please contact our Advocacy Groups for more information about sickle cell disease.
Medical Disclaimer: The pages on this web site are for education and informational purposes only. Do not use this material to diagnose or treat a health problem; it is not a substitute for professional medical care. If you have concerns about a health problem, consult your doctor. This site is not meant as a substitute for the important healthcare discussions that should occur between an individual and their medical team. No liabiity is assumed by the Haplo SCD Consortium for any damages resulting from use or access to information posted on this website.