Educational resources
- Patient Information Sheet (study specific; CHW IRB approved)
- Consortium Patient Brochure
- Transplant Terminology
- Hope and Destiny (targeted for patients and parents. Available by Hilton Publishing for purchase)
External links
- National Marrow Donor Program (NMDP) - Super Sam versus the Marrow Monsters (Video)
- Me and My Marrow - A Kid's Guide to Bone Marrow Transplants by Karen Crowe in partnership with Fujisawa Healthcare. copyright © 1999 by Fujisawa Healthcare, Inc (electronic version made available on www.bridges4kids.org)
- ClinicalTrials.gov- A registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.
- Children's Sickle Cell Foundation
- Sickle Cell Disease Association of Illinois (SCDAI)
- Sickle Cell Community Advisory Council of Northern California
- National Marrow Donor Program (NMDP)
- National Bone Marrow Transplant Link Resources and Support
- Center for Disease Control- Sickle Cell Disease (SCD) National Resource Directory
Medical Disclaimer: The pages on this web site are for education and informational purposes only. Do not use this material to diagnose or treat a health problem; it is not a substitute for professional medical care. If you have concerns about a health problem, consult your doctor. This site is not meant as a substitute for the important healthcare discussions that should occur between an individual and their medical team. No liabiity is assumed by the Haplo SCD Consortium for any damages resulting from use or access to information posted on this website.